I’m riding the specialist circuit again for pain and bleeding of various natures. Among the culprits is the same old endometriosis, this time in a surprise new location!
And the doctor did not know what to do with that. In all fairness, he is a gastroenterologist and not an endo specialist, so this knowing maybe shouldn’t be expected of him.
But neither did the last doc or the other one or the one before that. Certainly, if I was in need of fertility help, they had plans for that. Or if I was interested in playing bodily organ roulette — with the caveats that even then, endo can come back and also that some permanent damage is already done — they would have been willing to discuss that further. (Though in medspeak, “discuss that further” does not always mean “be willing to perform the procedure.”) However, in terms of helping me live the day-to-day life I have right now? No one seems to be so good at that.
My GP understands my priorities, but treating people who have weird versions of uncommon conditions is not her specialty. It is, in fact, why she refers me to specialists.
Not seeing so many rays of light from medical providers, I asked in an online support forum for people with endo. I’ve been a member of said community for a while, and I know they’re knowledgeable and resourceful. The suggestions they offered were not bad options — hormonal medications, surgery, diet, herbal treatments, acupuncture — but they were all options I’d tried, most of them multiple times over.
And that’s sort of the crux of it. It’s not anyone’s fault, but no one can offer me something I haven’t already considered, something I haven’t already done. Which makes me feel like, when all is said and done, I’m with this, alone.