And cross posting, as this originally appeared on my Tumblr.
22. My illness has taught me:
- That there have been basically no new advances in endometriosis management in the last 10 years.
- That we still have a long way to go in separating a woman’s quality of life from her baby-making potential. (To be fair, the ability to have biological children is a huge factor for some women. For others, though, it’s somewhat or very much less important than day-to-day living quality.)
- That a lot of people (presumably without chronic pain) don’t understand what “chronic pain” actually means.
- That there is all kind of judgment against people who take pain medications regularly, particularly when those medications aren’t societally approved (e.g., marijuana) or have the potential to become physically addictive (e.g., narcotics). Moreover, that a number of folk are willing to concern troll about what “might” happen to you as a side effect of a given medication without understanding the certainty of the pain you will face without it.
- That everyone and their cousin has a Magic Fucking Solution for endo… except, you know, when you’ve tried that. Twice.
I’m not sure which of those frustrates me the most. (Personally, it varies depending on day and context.) Discuss.